Hi got to ask Recently my daughter has been diagnosed with a bone tumour in her hip She is very well and we are under the care of Great Ormond Street, we have been told its a condition called LCH (Langerhans Cell HIstiocytois) At the moment they are just going to watch her as it might go in to remission by its self which would be fantastic as she has been through so many tests bless her. Would like to know if any one has heard of this condition Many Thanks Michelle

Sorry, cant help at all just want to wish you all the best

hi yes i have heard of this, did the doctors say it was "single system" or "multi"? also how old is your little girl?, i ask as there is a very good book (booklet) called PEPPERMINT WARD which helps children with their emotions , feelings, questions , its also good for family to read also, which may be of use to you all. the doctors should have them at the hospital,
to you all xx

I havent heard of it before , but pray all goes well!
xxxx

Hiya hun, sorry i cant help you but i just wanted to give you my very best wishes xx

Handmaiden thanks very much will try and get a copy of the book, at the moment it seems to be only single system we are waiting on more tests fingers crossed My little girl is five going on 25 LOL

I wish you all the best and that your little girl will be healthy soon.

Just wishing you and your family all the best of luck.

Bless her, wishing you all the best of luck for a full recovery

sending good vibes your way!! keep us posted!

Sending lots of love 2 you and your little Girl.

My little girl is 5 so this hits very close to home. I wish you all the best and hope that they can get you some answers.
Michele

Thanks for all your kind replys Will let you know how things go. Its great to just get it off my chest without upsetting people that are close to me thanks for your support Michelle If anyone does have any experience of LCH please let me know