Ashbergers syndrome

[*Garfield*]

Hi

After years of heartache & trips to specialist Drs my oldest (who is 9) has been diagnosed with Asbergers syndrome. We have always known he was a little different, and it has caused us a lot of family trouble as he is a damanding little boy to look after.

I just wondered if anyone here has had experience of this condiotion, or knows of anywhere we can find out more. They have said there is little to be done at this stage, just 1 to 1 sessions to observe him, and routine/regiment everything as much as poss. They cant medicate as he is at the lower end of the spectrum.

 

[HappyHands]

hi.. try adhd in suffolk they may be able to help you.. they are really good and should be able to tell you places where you can get help in you area.. google adhd in suffolk and look for the site that had the contact no. for linda sheppard she is a good friend of mine and would be more willing to help hth

 

[*Garfield*]

Thanks Liz, I will do that.:hug:

 

[Zuise.e]

Hi

After years of heartache & trips to specialist Drs my oldest (who is 9) has been diagnosed with Asbergers syndrome. We have always known he was a little different, and it has caused us a lot of family trouble as he is a damanding little boy to look after.

I just wondered if anyone here has had experience of this condiotion, or knows of anywhere we can find out more. They have said there is little to be done at this stage, just 1 to 1 sessions to observe him, and routine/regiment everything as much as poss. They cant medicate as he is at the lower end of the spectrum.

Hi,

You could try contacting the National Autisitic Society http://www.nas.org.uk/nas/jsp/polopoly.jsp?d=10
If you ring the helpline, they may be able to put you in contact with a local Aspergers support group. They are very helpful.
If you want to ask me anything, pm me, I'd be happy to help if I can. My son has Aspergers too (he is 14) xxI

 

[redhot_bird]

I actually work in a school with afew children who have Asperger's syndrome. We use this site to give parents information, i hope this helps

http://www.nas.org.uk/nas/jsp/polopoly.jsp?d=212

xxxx

 

[*Garfield*]

Thats great, thanks loadsX:hug:

 

[jobo]

hi chick

so sorry to hear this as its difficult. my son has never been given a correct diagnosis as he does not fit the criterias!!!!
at 9 he had the reading,writing,maths etc of a 14yr old but performed as a 6 year old.
anyhow what i found interesting was a psycologist who told me that because he had walked before crawling (crawled for 2 weeks then walked at 8 months) that his brain had failed to develop properly in the area that allows us to visualise space and areas. this is why he found art frustrating because he cant grasp 3d etc. he is also very clumsy!! he could never be an architect or anything yet for some reason he would make a fab scientist, be able to speak several languages fluently or make a great english literatist. it was so right that i stopped worrying and thought so wot he cant draw but the bits he can do are great.
im no expert but aspergus is similar. your son may lack in areas but will excel in others. my lad is great with dates, facts and figures and responds so much better now hes routined strictly and over the past year his behaviour has improved so much. Your little fellow with your support will be just fine and maybe the next einstein!!!!
chin up chick these kids are special and we are blessed to have them even though some days we wanna run away!!!lol take care:hug:

 

[bengalkat]

Ahhh...I've been where you are! It took us 5 years and 4 therapists before our son was diagnosed with Asperger's. It was such a relief to finally get some answers. He's now 11. He was diagnosed almost three years ago. Dalton is also on the very lown end of the scale but we were never told that we couldn't medicate. We've chosen NOT to medicate but I'll admit that we've been tempted many times. We did have him with a counselor/psychiatrist for several months working on behavioral modification. We were lucky enough to find a WONDERFUL therapist who did really well with our son. We had asked his pediatrician to refer us to someone who he thought would work well with Dalton and he chose the perfect doctor.
There isn't enough knowledge our there about AS. It was originally 'found' back in I think 1944/1945 but it wasn't officially put into books as a diagnosis until about 11 or 12 years ago. A lot of kids were misdiagnosed as having add or adhd and given medication to treat those and therefore it didn't work. Do what you can to find a really good therapist who your son also trusts. Your son has to feel comfortable with him/her.
Dalton started out in special ed preschool and is now in 5th grade and has been in the gifted program for 4 years. He's a very smart kid but also is SO textbook with a lot of the Asperger's stuff I've read and learned about. Email me privately if you ever want to talk or have any questions. It was very hard to hear someone say, "Your child has xxx" BUT, for us it was so much an answer to all of the issues we've dealt with over the past 11 years. He also has tendencies towards OCD, anxiety and depression.

Michele

 

[IllumeGirl]

hi my son has aspergers..he's nine in september, i love him to bits. sure the behavioural (socialisation) bit can get a bit wearing, plus they are pretty high maintenance, but i wouldnt change him for the world...aspergers makes him the funny little thing he is. typed this quickly between clients..if you want some support i am here for you..dont think twice about pm ing me. xxo

 

[Zuise.e]

There's a really good book I can recommend called "Freaks, Geeks and Aspergers Syndrome" written by Luke Jackson, a boy with the condition. I read the book and then gave it to my son to read when he was 12 - he could really relate to it and I think helped him to understand his differences.

 

[Gemma1982]

Hello,

It's so nice to see so many people sharing their experiences. My brother is autistic, and when we were growing up in the 80's this sort of thing wasn't recognised as it is today, and I remember at times how desperate my mum and dad used to feel.
In my adult life I have worked in a childrens home with a young lad who had aspergers. Although he was 12 years old, we arranged for him to have some play therapy, he used the sessions as a form of release and expression - worth a thought maybe? Also if your son has behavioural issues, maybe a nutritonist could offer some advice. Thanks for sharing this with us, and all the best.
Gemma xxxx:hug:

 

[Zuise.e]

Hello,

It's so nice to see so many people sharing their experiences. My brother is autistic, and when we were growing up in the 80's this sort of thing wasn't recognised as it is today, and I remember at times how desperate my mum and dad used to feel.
In my adult life I have worked in a childrens home with a young lad who had aspergers. Although he was 12 years old, we arranged for him to have some play therapy, he used the sessions as a form of release and expression - worth a thought maybe? Also if your son has behavioural issues, maybe a nutritonist could offer some advice. Thanks for sharing this with us, and all the best.
Gemma xxxx:hug:

Hi - I went down the nutrition road quite a few years ago and got loads of help from a group called Allergy Induced Autism http://www.autismmedical.com/?selected_menu=0
It can all be a bit daunting at first and can take time to find out which types of foods can have effects. I found my son's favourite foods really kicked off behaviour problems and he craved them, especially carbs (bread and pasta) and his biggest enemy was ketchup!! Like you say it's worth looking into xx

 

[*Garfield*]

Hello,

It's so nice to see so many people sharing their experiences. My brother is autistic, and when we were growing up in the 80's this sort of thing wasn't recognised as it is today, and I remember at times how desperate my mum and dad used to feel.
In my adult life I have worked in a childrens home with a young lad who had aspergers. Although he was 12 years old, we arranged for him to have some play therapy, he used the sessions as a form of release and expression - worth a thought maybe? Also if your son has behavioural issues, maybe a nutritonist could offer some advice. Thanks for sharing this with us, and all the best.
Gemma xxxx:hug:

Hi Gemma,

Yea, hes starting the play therapy soon, there is a waiting list at the moment, but hopefully it wont be too long! Id never thought about the nutrition side of things, i will definately look into that, thanks for your input!:hug:

 

[IllumeGirl]

a supportive school is essential for both you and your son. we are lucky to have a wonderful school and a teachers aid for most of the day. it is very overwhelming in the beginning to learn your child has a disability but there certainly are worse ones to have, and its quite a common one especially amongst boys. i found it quite a relief to finally find a reason for his behaviour, although initially i was very upset for him that he was different to other kids and always will be. there is a huge amount of info on the net which is so helpful and plenty of support groups...even on the geek! :hug:

 

[Gemma1982]

Your welcome and let us know how things go!

 

[oneiljo2]

John

hi chick

so sorry to hear this as its difficult. my son has never been given a correct diagnosis as he does not fit the criterias!!!!
at 9 he had the reading,writing,maths etc of a 14yr old but performed as a 6 year old.
anyhow what i found interesting was a psycologist who told me that because he had walked before crawling (crawled for 2 weeks then walked at 8 months) that his brain had failed to develop properly in the area that allows us to visualise space and areas. this is why he found art frustrating because he cant grasp 3d etc. he is also very clumsy!! he could never be an architect or anything yet for some reason he would make a fab scientist, be able to speak several languages fluently or make a great english literatist. it was so right that i stopped worrying and thought so wot he cant draw but the bits he can do are great.
im no expert but aspergus is similar. your son may lack in areas but will excel in others. my lad is great with dates, facts and figures and responds so much better now hes routined strictly and over the past year his behaviour has improved so much. Your little fellow with your support will be just fine and maybe the next einstein!!!!
chin up chick these kids are special and we are blessed to have them even though some days we wanna run away!!!lol take care:hug: