I've been on both sides of the fence, I worked my arse off from school, had my first two kids very young and found myself single with a tot and newborn - he walked out 5days after our son was born. I continued working my arse off until my son was taken into hospital at 5months with severe swollen body.
It was after a rushed trip to great ormond St Hosp that he was diagnosed with a very rare muscle wasting and liver disease 1:200,000 to be precise.
As a single mum my working life was stopped instantly. Living on benefits back then seemed too easy but I think that was more to do with spending more time in Hosp than at home, travel refunded if I did go home and food was often off the ward trolley for me and my eldest.
4yrs on benefits and then off to work full time thanks to meeting a partner who was ready to do the family life and shared care enabling us to be a two job/care for sick child household.
7yrs I again worked my arse off until my son got so ill he was in London hospitals for months at a time and my position couldn't be held open any more, my partner decided he couldn't cope with being only breadwinner and paying for hosp trips so buggered off leaving me with now 3 kids.. Back on benefits..
And there I've been for 11yrs, caring for my son, dealing with fits, blackouts, body shutdown, paralysis, loss of speech, loss of vision, hypos etc.
he has been tube fed since he was 5months old, now only when he is not feeling right.
He spent more time in hospital than in school and at least twice a week I'd get a call to collect him from school as he'd collapsed n he'd need his wheelchair for a few days again..
I couldn't work as his condition was unpredictable, he didn't know when he'd go,
So I started voluntary work around him, places where I wasn't tied to a contract or could be away due to his condition or appts in the 4 diff hospitals around southampton and London..
I've constantly heard how I've got it easy but folk only see what they want to.
Used to get so much grief for parking in disabled bays despite having a badge for him *shrugs*
So here we are now, he is coping with his condition and doing well.
I have 2 children with special needs now, I am trying to better myself and the life of my kids at home by using my skills learnt and getting myself off main benefits and making our lil unit more socially acceptable.
Life on benefits has been bloody hard these last 5yrs esp. I'm still looking after my son during bad times, my daughters dairy free/soya free diet due to severe allergies is very expensive, hospital appts for two kids under 7 diff clinics, been hugely stung/shafted by the bedroom tax, can't afford to fix my old car so mobile work is via bus, desperately want to do more courses to be able to offer more to clients but funds are empty, don't use heating unless it snows due to costs, got in trouble for working voluntary and accepting travel expenses, etc etc.
So many more things I could add but wanted to give the general gist of how its been.
I am embarrassed to say I'm on benefits BUT the difference is I am TRYING to get off them and one day I will.
when I've worked I put my all into it and lived a better, warmer life.
I know I've waffled and probably said more than was needed and will most poss delete this later
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