Why won't doctors listen-any geeks with Autistic/Aspergers children?

[surf girl]

It really does baffle me why people want to push to get their child labelled????

Once their "labeled" (but in actual parenting terms we call it diagnosed) the parents can get some support on dealing with them in the best way, do u have any idea on how difficult is to live with someone on the spectrum when you know that something's wrong and you don't know why that child dosent respond to "normal" life teaching? I personally have 2 very close friends with children on the spectrum & also a son who was finally "labeled" as dyslexic recently, when the label was finally applied guess what!? The teachers started to teach him differently and now in the space of a year he's learned to read & write and has just passed almost all of his GCSEs! Thank god for the label I say! Well diagnosis I would actually say!

 

[sallysally]

Once their "labeled" (but in actual parenting terms we call it diagnosed) the parents can get some support on dealing with them in the best way, do u have any idea on how difficult is to live with someone on the spectrum when you know that something's wrong and you don't know why that child dosent respond to "normal" life teaching? I personally have 2 very close friends with children on the spectrum & also a son who was finally "labeled" as dyslexic recently, when the label was finally applied guess what!? The teachers started to teach him differently and now in the space of a year he's learned to read & write and has just passed almost all of his GCSEs! Thank god for the label I say! Well diagnosis I would actually say!

I call it labelled and will continue to do so.....you have absolutely no idea about my life and what I have encountered so as far as "you have no idea how difficult it is " comments are stupid....i have my Opinion as does every other single salon geek...I don't like the sound of you one bit so please please can you refrain from responding to any of my comments I will continue to have my opinions so please go away.

 

[Emily S]

It really does baffle me why people want to push to get their child labelled????

Why wouldn't they want answers to the daily struggles and frustrations?!

Why does any disability come with a 'label'?

Should a down syndrome child not be told they're down syndrome or is that ok as it's visible?

My 2 nephews are both autistic, both in different ways. Without a diagnosis they don't get the support they need. My eldest nephew was 4 when he got expelled for the first time, then again when he was 6 after having 14 suspensions. He was then home schooled by a tutor who also struggled to deal with him, she wasn't trained to deal with his issues. Eventually at the age of 7 he was diagnosed with Aspergers and finally got into a special school an hour away from our home town, he has been there ever since and boards there 2 nights a week. Without the diagnosis there'd be no funding to get him to school or to stay over there.

He's just gone 13 in July and has already sat some of his GCSE'S and is in the year above what he's meant to be.

Without that diagnosis he would've been pushed around from school to school labelled a 'naughty kid'.... That's exactly why they need a diagnosis so that ignorant people don't 'label' them wrongly!

 

[Emily S]

I call it labelled and will continue to do so.....you have absolutely no idea about my life and what I have encountered so as far as "you have no idea how difficult it is " comments are stupid....i have my Opinion as does every other single salon geek...I don't like the sound of you one bit so please please can you refrain from responding to any of my comments I will continue to have my opinions so please go away.

Kahuna hair actually said 'do you have any idea ...', not 'you have no idea... '

 

[sallysally]

Why wouldn't they want answers to the daily struggles and frustrations?!

Why does any disability come with a 'label'?

Should a down syndrome child not be told they're down syndrome or is that ok as it's visible?

My 2 nephews are both autistic, both in different ways. Without a diagnosis they don't get the support they need. My eldest nephew was 4 when he got expelled for the first time, then again when he was 6 after having 14 suspensions. He was then home schooled by a tutor who also struggled to deal with him, she wasn't trained to deal with his issues. Eventually at the age of 7 he was diagnosed with Aspergers and finally got into a special school an hour away from our home town, he has been there ever since and boards there 2 nights a week. Without the diagnosis there'd be no funding to get him to school or to stay over there.

He's just gone 13 in July and has already sat some of his GCSE'S and is in the year above what he's meant to be.

Without that diagnosis he would've been pushed around from school to school labelled a 'naughty kid'.... That's exactly why they need a diagnosis so that ignorant people don't 'label' them wrongly!

I am sorry Emily but you are not making me feel bad or guilty one bit for my comment.I stand by my comment .I really do believe some parents PUSH labels on their children when maybe all they need is better parenting skills.

My opinion is certainly not directed at every parent of a child with difficulties. As I quote again PUSHING labels on children.

 

[Niksmiss]

Mommabear, your comments sound like my story I have got going on with my 4 year old.
I am positive my daughter is on the spectrum but time and time again the docs have either said she's too clever to be autistic or its because I am divorced from her father etc etc they have always got an excuse.
My daughter starts 'big school' in September so hopefully the school can back me up in getting a diagnosis so I can have a better understanding how she sees the world xx

Just re-read this one.

Tell your doctor.... "For the record, being smart does not mean it is unlikely your child is Autistic... Autistic children have been seen to be incredibly clever [emoji13]" it is true though, and give him a big SO THERE! While you're at it!

 

[surf girl]

I call it labelled and will continue to do so.....you have absolutely no idea about my life and what I have encountered so as far as "you have no idea how difficult it is " comments are stupid....i have my Opinion as does every other single salon geek...I don't like the sound of you one bit so please please can you refrain from responding to any of my comments I will continue to have my opinions so please go away.

If you post on a public forum with a ridiculous comment like that I most certainly will be responding, your comment has incurred more than one response so don't bother singling me out for pointing out how ignorant it came across, untill my account is taken off me I won't go away, and I will also stand up for every person trying to get a diagnosis or "label" for their child. People like you need to back off out of threads like this, your in no way helpful and are clearley uneducated or inexperienced in the autistic spectrum and how it makes family's feel, unless you have something constructive to say I think it's you that needs to "go away"

 

[TanBird]

Without that diagnosis he would've been pushed around from school to school labelled a 'naughty kid'.... That's exactly why they need a diagnosis so that ignorant people don't 'label' them wrongly!

Wish I could "like" that more than once ;-)

If you know what you're dealing with, you can find out how to work with/help the autistic person and those who teach him.

Just re-read this one.

Tell your doctor.... "For the record, being smart does not mean it is unlikely your child is Autistic... Autistic children have been seen to be incredibly clever

Example - there was an a lad at my uni doing a maths degree. He was pretty autistic, it was very noticeable. Fortunately he met some people who were very open to being his friends and accepting his differences - because they knew he was autistic.

Some GPs can be bl**dy ignorant themselves.

 

[Niksmiss]

Last 2 cents.

I knew a single mum with two boys. Youngest was ADHD. I caught him twisting the arm of a 4 year girl (boy was about 8) whom I was babysitting right up her back. I confronted him (did not know his diagnosis at this point) and his mum came out and had a go at me "he doesn't know what he's doing he's got ADHD" actually screaming it at me. I told her that was no excuse to allow him to bully other children! This was before my now 15 year got diagnosed. He was nearly 3 at this point.

My point is, some parents allow the bad behaviour because of the diagnosis... They seem to think it's ok instead of trying to get their child to understand that it is wrong. That's the kind of parent I do not like.

 

[TanBird]

This thread may be worth reading. I was wondering about private diagnosis; but it is apparently very expensive and not usually accepted - NHS is best. Makes sense if you read this thread:
http://www.netmums.com/coffeehouse/...orth-paying-private-autism-diagnosis-all.html

 

[sallysally]

If you post on a public forum with a ridiculous comment like that I most certainly will be responding, your comment has incurred more than one response so don't bother singling me out for pointing out how ignorant it came across, untill my account is taken off me I won't go away, and I will also stand up for every person trying to get a diagnosis or "label" for their child. People like you need to back off out of threads like this, your in no way helpful and are clearley uneducated or inexperienced in the autistic spectrum and how it makes family's feel, unless you have something constructive to say I think it's you that needs to "go away"

You have a close friend with Autistic children,I have 2 Autistic girls in my family....your son has 'dyslexia' my mother has 'dyslexia' therefore how are you more experienced than me? Are you some a Doctor or Autism specialist who gives people exclusive rights to comment on a post????

You have twisted this and now caused this thread to be full of hostility.The original poster of this thread has actually liked my previous comments in this post so I think you have just decided to chip in mid thread.

But I would expect nothing less from a Bully like you,

Well done for ruining a Decent thread!

 

[surf girl]

You have a close friend with Autistic children,I have 2 Autistic girls in my family....your son has 'dyslexia' my mother has 'dyslexia' therefore how are you more experienced than me? Are you some a Doctor or Autism specialist who gives people exclusive rights to comment on a post????

You have twisted this and now caused this thread to be full of hostility.The original poster of this thread has actually liked my previous comments in this post so I think you have just decided to chip in mid thread.

But I would expect nothing less from a Bully like you,

Well done for ruining a Decent thread!

Such a sweet person arnt you, how do your close people feel about you saying their affected ones are labeled? Bet they love that

 

[Niksmiss]

*whispers* it's a diagnosis

 

[Niksmiss]

This thread may be worth reading. I was wondering about private diagnosis; but it is apparently very expensive and not usually accepted - NHS is best. Makes sense if you read this thread:
http://www.netmums.com/coffeehouse/...orth-paying-private-autism-diagnosis-all.html

Certainly does make an interesting read

 

[Emily S]

It really does baffle me why people want to push to get their child labelled????

I am sorry Emily but you are not making me feel bad or guilty one bit for my comment.I stand by my comment .I really do believe some parents PUSH labels on their children when maybe all they need is better parenting skills.

My opinion is certainly not directed at every parent of a child with difficulties. As I quote again PUSHING labels on children.

I am baffled why you feel the need to say I was trying to make you feel bad or guilty?!

You say that another poster on here is making the thread hostile but imply I was doing anything other than answering your question.

A diagnosis is important. In SOME cases, I agree parents will do anything to cover up their child's bad behaviour as a disability but the OP hasn't given any reason to believe that this is what she's doing therefore your comment about 'people labeling their child' is irrelevant and unfair in this thread given the information we have.

I was never in any way trying to make you feel bad, I was hoping it would actually give you an understanding.

 

[sallysally]

I am baffled why you feel the need to say I was trying to make you feel bad or guilty?!

You say that another poster on here is making the thread hostile but imply I was doing anything other than answering your question.

A diagnosis is important. In SOME cases, I agree parents will do anything to cover up their child's bad behaviour as a disability but the OP hasn't given any reason to believe that this is what she's doing therefore your comment about 'people labeling their child' is irrelevant and unfair in this thread given the information we have.

I was never in any way trying to make you feel bad, I was hoping it would actually give you an understanding.

I don't need an understandingI have two two young cousins with Autism??? I told the OP about how my cousin was turned away from her Doctor as was she !! ...anyway I don't need yo explain myself to you....I have a different opinion to you and still stand my my words some parents LABEL their children.so back off trying to make me look bad and all you 'Autism experts' get on with it.....I also believe the theory that Autism can SOMETIMES be caused by cold parenting without structure or security,MY OPINION!

 

[pure]

Can I please remind everyone to stay on topic for the OP who asked for advice specifically with gaining a diagnosis, not opinions on the condition.

 

[surf girl]

I don't need an understandingI have two two young cousins with Autism??? I told the OP about how my cousin was turned away from her Doctor as was she !! ...anyway I don't need yo explain myself to you....I have a different opinion to you and still stand my my words some parents LABEL their children.so back off trying to make me look bad and all you 'Autism experts' get on with it.....I also believe the theory that Autism can SOMETIMES be caused by cold parenting without structure or security,MY OPINION!

Wow... Just wow....

 

[AcidPerm]

I don't need an understandingI have two two young cousins with Autism??? I told the OP about how my cousin was turned away from her Doctor as was she !! ...anyway I don't need yo explain myself to you....I have a different opinion to you and still stand my my words some parents LABEL their children.so back off trying to make me look bad and all you 'Autism experts' get on with it.....I also believe the theory that Autism can SOMETIMES be caused by cold parenting without structure or security,MY OPINION!

No, Autism is a genuine condition that has NOTHING to do with any parenting techniques.

I agree with you that labels are not helpful, especially when judging someone else's parenting abilities.

 

[Emily S]

I don't need an understandingI have two two young cousins with Autism??? I told the OP about how my cousin was turned away from her Doctor as was she !!

Well then you'd understand why people (your very generalised term) would push for a 'label'.

Doctors are human and make errors, sometimes a 2nd/3rd opinion. As I pointed out, my sister had such a struggle with my eldest nephew and he wasn't diagnosed on his first trip to the doctors, I can assure you that.

I am by no means an 'autism expert' I just choose to look at the bigger picture so I don't offend 'people', it's a far better life than tunnel vision