No update from the doctors but my salon have dropped me as an apprentice. Apparently I'm too much of a risk.
Oh no, that sucks. So sorry hon. X
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Completely exhausted for no reason
- Thread starter Kristalinx
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Oh no, that sucks. So sorry hon. X
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Kristalinx
Well-Known Member
I wasn't on my contract yet, I was due to get it this week. It was only two days but it must have been too much for them. I've had this problem before in other jobs because I've always had health issues and on-going medical problems. Soon as I can work for myself I'm going for it.
Oh no that's really rubbish but it's happened for a reason, focus on getting yourself better I've got a doctors appointment today because I feel the same but I think I have PTSD (Post Traumatic Stress). I'm really finding it hard to cope with work at the moment & I only work 20 odd hours! What the? Never had a problem until about a fortnight ago when everything started to get on top of me. Then to add to that the specialist at the hospital thinks I have a prolapsed disc in my back. Dayum
I've got a doctors appointment today because I feel the same but I think I have PTSD (Post Traumatic Stress). I'm really finding it hard to cope with work at the moment & I only work 20 odd hours! What the? Never had a problem until about a fortnight ago when everything started to get on top of me. Then to add to that the specialist at the hospital thinks I have a prolapsed disc in my back. Dayum
lila22
Well-Known Member
I'm so sorry, I hope you get to the bottom of why your not well, I can't work due to ME and hopefully one day will be able to but will defiantly be for myself as hate letting others down.
I really feel for you if you need to chat pm me xxx
lila22
Well-Known Member
Oh no that's really rubbish but it's happened for a reason, focus on getting yourself better
Ah no that's not good either, I hope your ok petal xx
Kristalinx
Well-Known Member
Thank you, it's so nice just be be able to get it all out and vent on here to people who understand.
xxTashaRose
Well-Known Member
Hope your feeling better soon poppet ( big hug ) I can't believe how many people there is with ME . It took seven years for me to be diagnosed and that was five years ago . Hopefully they find out what's causing your problems soon xx
lila22
Well-Known Member
Wow i thought they were bad taking four years with me!
I've had it 15 years now and would not wish on my worst enemy! Xx
TashaRose
Well-Known Member
Their a nightmare arnt they Lila?? Stopped working in 2008 , have been up and down with it since ( with a few children thrown in for good measure -although this was during a year when I thought I was doing really well ) but I relapsed shortly after . Determined to just work for myself now as and when I can . Only really family and friends though .
Don't worry op , if you have the same diagnosis you'll never be short of support here by the looks of it xx
-although this was during a year when I thought I was doing really well ) but I relapsed shortly after . Determined to just work for myself now as and when I can . Only really family and friends though .Don't worry op , if you have the same diagnosis you'll never be short of support here by the looks of it xx
I also have ME/fibromyalgia.
I work from home self employed,makes my life so much easier as I can work around flares, bad days and make sure I have rest periods etc (which most employers WILL NOT understand)
Hope things get easier for you soon xx
I work from home self employed,makes my life so much easier as I can work around flares, bad days and make sure I have rest periods etc (which most employers WILL NOT understand)
Hope things get easier for you soon xx
Meira
Well-Known Member
Me too! Was diagnosed 2011. Went self employed last year and have been able to cope so much better being in control of my own working hours. Only prob now is the husband has decided he's had enough of carrying the financial burden and thinks I should get a part time job even though we do more than fine on his salary alone 😣 think he thinks it will be good for me to get out of the house more and be less of a hermit 😕
I feel for you.
People just DO NOT understand how hard it is too 'just get out the house' do they 😟 xx
Pinkbunny28
Well-Known Member
Ladies I have a question and maybe some advice?!
So I have this client with ME. She has other health issues too but they're irrelevant to this. I just wondered if anyone can tell me if you can ever recover from having this condition?
Also, she's been put on daily exercise. This has been VERY slowly increasing from 1 minute and I believe she is now on over 10 minutes. She has most definitely benefited from this and you can see that she's getting better every day. Obviously she still has her bad days but I really think this therapy works (so far anyway). What do you all think? Have you done anything like this?
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So I have this client with ME. She has other health issues too but they're irrelevant to this. I just wondered if anyone can tell me if you can ever recover from having this condition?
Also, she's been put on daily exercise. This has been VERY slowly increasing from 1 minute and I believe she is now on over 10 minutes. She has most definitely benefited from this and you can see that she's getting better every day. Obviously she still has her bad days but I really think this therapy works (so far anyway). What do you all think? Have you done anything like this?
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You can not get better from ME as such, you learn how to deal with it better and show to control it (pacing, rest breaks, controlling stress levels, meditation etc) BUT they will always be a time when you will relapse, weather it maybe months, years etc down the line.
I know if a lady that went 18 years, got her life back on track, starting working again etc, then had a relapse and has so far been bed bound for 7 months 😟
They do say that exercise can help, although I am yet too see this, I joined a gym at the beginning of the year, I ended up passing out from pain!! (I was only in there a total of 6 minutes!!) I just don't understand how we are supposed to exercise, when some days, I can not even get out of bed or move my body, bear light, wash, brush my teeth, cuddle my children etc, because I am in so much pain, imagine me trying to push myself to exercise 😐
Although, everybody's different when it comes to ME and they is so many different symptoms xx
lila22
Well-Known Member
I've done graded exercise amongst other things but the main thing that helps me is pacing myself.
I try and keep away from chemicals watch whAt l eat, try and stick to routine.
It's took a while probably ten years before I could pace myself as when I get any energy I want to do things which would end me back in bed!
I have heard people having ME who recover but I don't ever thing you can be the same again.
For example my skin is awful ATM so I've been using a spot cream from the doctors which has made me feel ill. I've dragged myself through the last few days and won't be using it again.
I use to be a right party girl always having fun and my life has changed to the total opposite.
I'm now like an old granny!! 😂xx
I have had ME now for 3 years, only got 'officially diagnosed' last year, I really really struggle with it tbh.
My life has changed SO much, before I got ME I was a lap dancer/pole dancer, worked 3 nights a week, earnt amazing money, had 1 night out a week in town with friends and survived on 6 hours sleep a night as was very energetic and loved to be out with the children etc.
Now ... Well it's a completely different story, I am very much like you, the very rare days I do have lots of energy, I feel like I need to do EVERYTHING, play games and treat the children, do all the housework, sort banking, send emails, maybe go out for some nice tea as a family etc etc, but guarantee that the next day I can not get out of bed!!
As for seeing friends etc, pffffftttt, I went to a friends house 4 months ago, for 3 hours, had a takeaway, didn't move off the chair the time I was there, had a chat, was In so much pain and struggling to move for 3 days after!!
Are you on any medication to help with pain etc? Xx
lila22
Well-Known Member
I no one night out (no drink, home by nine) you pay for it! So not worth it.
Sorry to hear about your situation, it is crazy how many hAve it.
After 15 years I can't see it going, I just have codine or cocodomal, I've has phisio ect but only so much you can do.
I did pay private for injections a few years ago but Nhs don't agree with it so I stopped. It was immuglobin injections.
If you ever want a chat/moan ect just pm me I'm always around and understand how you feel xxx
Meira
Well-Known Member
We should start an ME/CFS group on here for all us geeks who need a moan and a chat.
lila22
Well-Known Member
May be a good idea as I must moan a lot 😱
Plus we can share tips, what helps ect.
I can't as on phone but we should certainly look into it xx
Ohh, I'm on gabapentin & sertraline, it really does help with the pain, I mostly just feel like Im Floating about somewhere, not really with it lol, although I still hit the horrible exhaustion wall 😫
A group is deffo a good idea, I am always moaning about this damn illness, I HATE it with a passion lol.
I know some people say 'acceptance' is he first step blah blah blah, I don't want to bloody accept it and I shouldn't have to either lol, I'm 22 and I actually feel like im 72 😕 xx
A group is deffo a good idea, I am always moaning about this damn illness, I HATE it with a passion lol.
I know some people say 'acceptance' is he first step blah blah blah, I don't want to bloody accept it and I shouldn't have to either lol, I'm 22 and I actually feel like im 72 😕 xx
